Thanks for dropping by. Leaders from The LAM Foundation in the United States and the leader of LAM organizations in 17 other countries came together last month to declare June 1st as an annual international day of awareness. Because LAM is such a rare disease, it does not usually get the media attention that other, more commonly diagnosed diseases often get.
In its mild state, LAM can be easy to live with. In later stages, the disease is ravaging and deadly, and the women who have it suffer greatly, both from the disease itself and because the lack of awareness forces them to become patient advocates for rare diseases by default, something which takes a lot of effort. Let’s help them by spreading the word about this rare disease so more medical professionals know what it is.
This post is dedicated to all of the women in the last year who died from complications of LAM.
